I am usually able to maintain hope and trust that things will work out, but there are days when I get so frustrated and angry I just want to scream and rant and yell at every medical professional involved in my care.
It was almost 3 months ago that results from a biopsy showed that instead of being cancer free I actually had cancer AGAIN! From the initial conversations about treatment, I expected that I would have surgery within a month, but with the referral to Edmonton I knew it would take a bit longer, BUT not this long. Research shows that a delay past 6 weeks for oral cancer treatment can potentially worsen the prognosis which adds to the anxiety.
As well, it’s tiring dealing with the pain, the fatigue, the difficulty in eating. It’s such an exhausting, frustrating and frightening time.
And … don’t give me false hope. I left the appointment with the surgeon so encouraged. He was going to get the surgery paperwork ready for my signature so it could be put in immediately. I was going to get the scan I needed right aways. I would probably have surgery the end of August. If I had any other questions, just get in touch. Ha! What a joke. Surgery paperwork – still haven’t seen it. Scan – don’t know where the requisition went, or if it’s even been sent. Surgery date – VERY unlikely. Get in touch – have done that twice and so far no one as returned the call.
There’s no option other than to keep waiting, but as my nieces said when they were much younger, “IT’S NOT FAIR!”